Anyone had their ankle fused / ankle fusion surgery?
I'm the original poster. The brace I wear is called an AFO brace (or technically, an "ankle-foot orthosis"). Here's a link to wikipedia, which has a paragraph or two on AFOs. Look partway down the
My doctor prescribed my AFO because after my initial ankle fusion (which fused the ankle joint) I still had pain in my ankle, like you. My pain continues because I also have severe arthritis of the
subtalar joint. If I had the second joint fused as well, then my pain might decrease. But since I'm not eager to do another fusion yet, I asked him for other options. The AFO immobilizes the second
joint, and my pain is significantly decreased because of it. In fact, at my last appointment, he told me that the joint space is entirely gone, and that I'm walking bone-on-bone. But it doesn't
bother me too much, day to day. If I decide to do something difficult, like spend 14 hours on my feet at Disneyland, then I pay for it the next day. But before my AFO, I would have spent the day at
Disneyland in a wheelchair, instead of on my own two feet.
Another advantage to wearing the AFO is that it super-helps with swelling. It goes from the ball of my foot, wraps around the back of my ankle/leg, and stops about 4 inches from my knee. (The
wikipedia page has 2 pictures of AFOs...one is a cool rainbow-colored one. Mine is plain white.) But anyway, because it covers so much of my leg, and it's hard plastic, then it kind of acts like a
pressure stocking. I have found that swelling directly contributes to my pain. The swelling puts extra pressure on the nerves, and by keeping the swelling down, it reduces pain.
The drawbacks to my AFO are few. First, they are expensive without insurance. I think mine was $700 before insurance paid. I ended up paying my deductible for it. Another minor complaint:I have to
put it on nearly as soon as I wake up, and certainly before I walk very much around the house at all. I need it that much. So I only take it off to sleep. I wish I didn't need it on all the time, but
I do. The biggest drawback, however, is that the brace is a bit bulky, and I have to wear 2 sizes of shoes to accommodate the brace. I wear a size 9 on my left foot, the uninjured one, but I wear a
size 10 on my right with my AFO. So every time I buy shoes, I buy two pairs. It can be expensive. Also, because I can't roll through my step well, I usually wear rocker-bottom shoes (Skechers
Shape-ups or MBT shoes, or Earth Shoes). I opt for the Shape Ups because I'd go poor buying two pairs of MBTs or Earth shoes all the time...they're too expensive. And finally, the other drawback is
that wearing a brace draws attention to the fact that I have a disability. I don't like people to notice that anything is wrong, so especially in summer, in shorts, people are always asking "What did
you do to your leg?". Just a small complaint, but still, a tiny bit annoying.
I've been able to postpone a second fusion for 3 years. I'm hoping I can go another 3 or 4 too. I've only had the one AFO for that whole time, and it's served me well. I think it's getting close to
needing a tune-up...a size adjustment because of atrophy of my calf and ankle muscles, and new velcro straps.
I'd definitely visit with your doctor about the AFO. I highly recommend it to anyone who continues to have pain after fusion. I really could not function without mine, unless I have another surgery.
I don't want to go 3-4 more months of non-weight-bearing yet. So my AFO has been a lifesaver.
But that's just my experience! I am fascinated by the broad spectrum of stories, injuries, and experiences I've found here. I wish that this forum didn't have so many stories similar to mine, but
I've learned so much from everyone else's experiences. I hope my experience can be helpful to you, even if an AFO isn't an option for you.
Best of luck! Keep us posted on what happens.
RheaMom24 months ago